Update in Life: I know I said I would try and keep up with my blog regularly but I have been pretty busy lately trying to get my life more together. I have found a new career that is getting me a step closer to my "dream job". I am a lead teacher in a Early Childhood Special Education classroom at a private school that specializes in individuals with Autism. I love it! :)
Update with my MG: I have been getting IVIG treatment every 4 weeks as well as lowering my Prednisone 5 mg every 3-4 weeks and have been feeling great! Currently I am taking 15 mg of Prednisone and have taken Mestinon maybe 3-5 times within the past two months! :) I have been feeling more active and been able to start doing some light exercises. I have an appointment with my Neuro at the end of November, I hope she is as proud as I am with how under control my MG has been!
Update in weight loss goals: I have been doing some light exercising for three weeks now, I started the week of October 7th doing some walking and stretching, the second week I did more walking and some days at a faster pace, and the third week I continued the walking and added some squats. I do not push myself too much but I try to push myself a little more each time. I am hoping that I will continue to feel well and keep exercising. I have not lost any actual weight (as in pounds) but I have noticed that my jeans have been fitting better and that I am starting to see my waist/curves a little more defined.(and a few people have noticed also, which is always a great motivator!) :)
Aside from the exercising that I have been doing, I have been trying to stay under 1500 calories daily as well as attempting to lower my carbs intake. I use the App "My Fitness Pal" to keep track of the calories and carbs, it's an awesome App and I highly recommend it! I have read in a few places that lower calorie intake is recommended for individuals on Prednisone and the lower carb intake is something that I am starting today (October 30) because my doctor recommended yesterday that I lower my carbs intake to try and prevent any other sickness/complication which can also develop due to Prednisone intake (like diabetes). I try to make healthier choices when eating, count all my calories, try not to eat red meat, and have not drank alcohol in 4 weeks!
I have to admit, it is not easy, but it is something that I am trying very hard because I want to get my life back and be active and be able to go out dancing or rock climbing! I truly believe making all these minor changes is helping me get my MG under control and gain more confidence!
MG Walk 2013: I am going to walk at the Houston MG Walk on Sunday November 3rd. I have a great little support group that is going with me and so happy to say that my mom is going to be able to be here from Illinois to walk next to me! Last year at the Walk in Illinois I was experiencing double vision, fatigue, and was only able to walk one mile. This year I am hoping that I can walk three miles (I think I can but I always have to be cautious because MG is unpredictable sometimes). I will post an update after the walk to let you know how far I was able to walk! :)
As of now, MG is only treatable, if you would like to make a donation to help support my team and help the MGFA in finding a cure for Myasthenia Gravis please go to www.mgwalk.org/yme Thanks!
As of now, MG is only treatable, if you would like to make a donation to help support my team and help the MGFA in finding a cure for Myasthenia Gravis please go to www.mgwalk.org/yme Thanks!
* "Be hopeful, but don't get you're hopes up."
* "Hope for the best, but prepare for the worst."
My brother Atson had myasthenia gravis MG. He got medically discharged out of the Army, a job he loved well. His heart had 5 myasthenic crises, 3 being severe enough to be ventilated or require CPAP (continuous positive airway pressure) helmet. He have had countless plasma exchanges as his veins are bad. He also needed Hickman lines inserted, he have been on azathioprine, mycophenolate (CellCept), methotrexate and none have worked. He is currently done with his herbal remedy I purchase from totalcureherbsfoundation .com which has totally cured his condition with a surprise after almost four months of their usage, he was discouraged and never thought he would be myasthenia gravis (MG) free ,to me the best to get rid of this condition is totalcureherbsfoundation com treatment because all medications we used never worked include azathioprine
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